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#longhauler

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Andrew Gifford ME/CFS photos<p>Valaciclovir - anti viral drug - for ME/CFS: what dosage have you found effective (if any)?</p><p>Asking for a me. My GP has cautiously started me on 500mg daily. The one small scale trial was using 4g daily.</p><p><a href="https://drmyhill.co.uk/wiki/Valacyclovir_in_the_treatment_of_post_viral_fatigue_syndrome" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">drmyhill.co.uk/wiki/Valacyclov</span><span class="invisible">ir_in_the_treatment_of_post_viral_fatigue_syndrome</span></a></p><p><a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pwME</span></a> <a href="https://mastodon.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongHauler</span></a></p>
longcovid<p>Many thanks to Thomas Nguyen, DO, pediatrician, and Frank Han, MD, pediatric cardiologist, for this discussion on pediatric long COVID. </p><p><a href="https://mstdn.social/tags/longCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCOVID</span></a> <a href="https://mstdn.social/tags/longCOVIDkids" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCOVIDkids</span></a> <a href="https://mstdn.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongHauler</span></a> <a href="https://mstdn.social/tags/pediatrics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pediatrics</span></a> <a href="https://mstdn.social/tags/TownHall" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TownHall</span></a></p><p><a href="https://youtu.be/B8_-r_Nf_mY" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="">youtu.be/B8_-r_Nf_mY</span><span class="invisible"></span></a></p>
Hyphlosion<p>Anyone know if there’s a ‘Long Covid’ or ‘Long Hauler’ support group instance I could follow? <a href="https://donphan.social/tags/LongCovid" class="mention hashtag" rel="tag">#<span>LongCovid</span></a> <a href="https://donphan.social/tags/longhauler" class="mention hashtag" rel="tag">#<span>longhauler</span></a></p>
mayday<p>Anyway, please sign this petition. </p><p>"In March 2022, the U.S. Government Accountability Office estimated that 23 million Americans had developed Long COVID. Nearly a year later, studies suggest that number could be as high as 41 million. Yet there is no cure or treatment available."</p><p><a href="https://spore.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://spore.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongHauler</span></a> <a href="https://spore.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://spore.social/tags/Artist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Artist</span></a> <a href="https://spore.social/tags/BrokeAsHell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BrokeAsHell</span></a> </p><p><a href="https://actionnetwork.org/letters/help-end-the-long-covid-crisis?source=direct_link&amp;" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://</span><span class="ellipsis">actionnetwork.org/letters/help</span><span class="invisible">-end-the-long-covid-crisis?source=direct_link&amp;</span></a></p>
mayday<p>it is hard to think or do anything. I wait for doctor's appointments, I wait to hear about my long covid clinic referral, I'm broke and dependent on my spouse, my medical history is too limited to apply for aid. </p><p>I take vitamins, monitor blood pressure, go outside every day to get a little sun and move small things around in the yard, and try to read and paint, but mostly sleep. It got easier for a little bit, but now it is more difficult.</p><p><a href="https://spore.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://spore.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongHauler</span></a> <a href="https://spore.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://spore.social/tags/Artist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Artist</span></a> <a href="https://spore.social/tags/BrokeAsHell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BrokeAsHell</span></a></p>
💖moonmouse (they/them)💖<p>the US said eh, we’re bored and just pretended COVID was over because they wanted it to be. That’s not how pandemics work. COVID cases are rising and our hospitals (especially children’s hospitals) are at their breaking points. All so people can act like things are back to what normal was prepandemic, like NEWSFLASH: 7 MILLION PEOPLE ARE DEAD. 1/ <a href="https://disabled.social/tags/covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covid</span></a> <a href="https://disabled.social/tags/masks" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>masks</span></a> <a href="https://disabled.social/tags/mask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mask</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://disabled.social/tags/LongHaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongHaulers</span></a> <a href="https://disabled.social/tags/longhauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longhauler</span></a> <a href="https://disabled.social/tags/wearyourmask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wearyourmask</span></a> <a href="https://disabled.social/tags/WearYourDamnMask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>WearYourDamnMask</span></a> <a href="https://disabled.social/tags/sad" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sad</span></a></p>
Emmanuelle<p><a href="https://fediscience.org/tags/introduction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>introduction</span></a> I am a <a href="https://fediscience.org/tags/MaterialsScience" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaterialsScience</span></a> <a href="https://fediscience.org/tags/professor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>professor</span></a> by profession, (former and attempting to relearn) aspiring clarinet player by love, Covid <a href="https://fediscience.org/tags/longhauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longhauler</span></a> by accident, and aspiring color pencil <a href="https://fediscience.org/tags/artist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>artist</span></a> and campus disability justice <a href="https://fediscience.org/tags/advocate" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>advocate</span></a> by choice.<br>It's nice to be here and I will post about all these and perhaps more!</p>